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- Publisher
- Wiley
- Copyright
- Copyright © 2014 John Wiley & Sons Ltd
- ISSN
- 1360-2322
- eISSN
- 1468-3148
- DOI
- 10.1111/jar.12063
- pmid
- 23775710
- Publisher site
- See Article on Publisher Site
Abstract
Background Researchers acknowledge the importance of understanding how families of children with autism cope. Yet, little is known about the experiences of older parents of adults with autism. Materials and Methods In‐depth interviews were conducted with 16 older parents of adults with autism. Narrative analysis was used to gain insights into their lived experiences. Results Participants' narratives reflected the notion that much of their experience was a delicate balancing act as they attempted to manage their offspring's symptoms of autism whilst achieving a degree of fulfilment in their own lives. Parents did not believe that formal services had adequately supported their ability to provide care whilst meeting other needs within the family context. Conclusions The findings have implications for services that attempt to support older parents' abilities to provide care, including the need for tailored intervention strategies that match each family's unique needs.
Journal
Journal of Applied Research in Intellectual Disabilities – Wiley
Published: Jan 1, 2014
Keywords: ; ; ; ;