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References (27)
-
S. Guerin, P. Dodd, Janette Tyrell, J. McEvoy, S. Buckley, J. Hillery (2009)
An initial assessment of the psychometric properties of the Complicated Grief Questionnaire for People with Intellectual Disabilities (CGQ-ID).Research in developmental disabilities, 30 6
-
S. Hollins, Alexander Esterhuyzen (1997)
Bereavement and grief in adults with learning disabilitiesBritish Journal of Psychiatry, 170
-
Read Read, Elliott Elliott (2007)
Exploring a continuum of support for bereaved people with intellectual disabilities: a strategic approachJournal of Intellectual Disabilities, 11
-
K. Dyregrov (2004)
Bereaved parents' experience of research participation.Social science & medicine, 58 2
-
R. Ray (1978)
The mentally handicapped child's reaction to bereavement.Health visitor, 51 9
-
Jonathan Smith (1996)
Beyond the divide between cognition and discourse: using interpretative phenomenological analysis in health psychologyPsychology & Health, 11
-
D. Bennett (2003)
Death and people with learning disabilities: empowering carersBritish Journal of Learning Disabilities, 31
-
Kitching Kitching (1987)
Helping people with mental handicaps cope with bereavement: a case study with discussionMental Handicap, 15
-
J. McEvoy, Y. Reid, S. Guerin (2002)
Emotion Recognition and Concept of Death in People with Learning DisabilitiesThe British Journal of Development Disabilities, 48
-
G. Murray, K. Mckenzie, A. Quigley (2000)
An Examination of the Knowledge and Understanding of Health and Social Care Staff about the Grieving Process in Individuals with a Learning DisabilityJournal of Learning Disabilities, 4
-
J. Bowlby (1961)
Processes of mourning.The International journal of psycho-analysis, 42
-
S. Read, D. Elliott (2007)
Exploring a continuum of support for bereaved people with intellectual disabilitiesJournal of Intellectual Disabilities, 11
-
P. Emerson (1977)
Covert grief reaction in mentally retarded clients.Mental retardation, 15 6
-
N. Kitching (2009)
Helping people with mental handicaps cope with bereavementJournal of The British Institute of Mental Handicap (apex), 15
-
O. Raji, S. Hollins, A. Drinnan (2003)
How far are people with learning disabilities involved in funeral ritesBritish Journal of Learning Disabilities, 31
-
S. Dowling, J. Hubert, S. White, S. Hollins (2006)
Bereaved adults with intellectual disabilities: a combined randomized controlled trial and qualitative study of two community-based interventions.Journal of intellectual disability research : JIDR, 50 Pt 4
-
Philip Dodd, Suzanne Guerin, John McEvoy, Sarah Buckley, Janette Tyrrell, J. Hillery (2008)
A study of complicated grief symptoms in people with intellectual disabilities.Journal of intellectual disability research : JIDR, 52 Pt 5
-
U. Gilrane-McGarry, Laurence Taggart (2007)
An exploration of the support received by people with intellectual disabilities who have been bereavedJournal of Research in Nursing, 12
-
Nick. Horn, L. Johnstone, S. Brooke (2007)
Some service user perspectives on the diagnosis of Borderline Personality DisorderJournal of Mental Health, 16
-
Bonell-Pascual (1999)
Bereavement and grief in adults with learning disabilities: a follow-up studyBritish Journal of Psychiatry, 175
-
Thurm Thurm (1989)
I've lost a good friendNursing Times, 85
-
N. Blackman (2008)
The Development of an Assessment Tool for the Bereavement Needs of People with Learning Disabilities.British Journal of Learning Disabilities, 36
-
S. Todd, Julia Sheam (1996)
Time and the Person: The Impact of Support Services on the Lives of Parents of Adults with Intellectual DisabilitiesJournal of Applied Research in Intellectual Disabilities, 9
-
A. Thurm (1989)
Mental handicap nursing. "I've lost a good friend".Nursing times, 85 32
-
S. Reynolds, S. Guerin, J. McEvoy, P. Dodd (2008)
Evaluation of a Bereavement Training Program for Staff in an Intellectual Disabilities ServiceJournal of Policy and Practice in Intellectual Disabilities, 5
-
Jill French, Ed Kuczaj (2009)
Working Through Loss and Change With People With Learning DifficultiesJournal of The British Institute of Mental Handicap (apex), 20
-
D. Elliot (1996)
Learning disabilities: a practical approach to helping people grieveBritish Journal of Community Health Nursing, 1
- Publisher
- Wiley
- Copyright
- Copyright © 2013 Blackwell Publishing Ltd
- ISSN
- 1360-2322
- eISSN
- 1468-3148
- DOI
- 10.1111/jar.12025
- pmid
- 23580205
- Publisher site
- See Article on Publisher Site
Abstract
Background This study explored the personal experiences of family carers and residential care staff in supporting adults with intellectual disabilities through the process of bereavement. Method A semi‐structured interview was used to interview 11 carers on their experience of supporting adults with intellectual disabilities through the process of bereavement. The transcripts were analysed using interpretative phenomenological analysis (IPA). Results A total of five superordinate themes were identified: (i) Factors making the experience difficult for carers, (ii) Factors that helped carers, (iii) Carers' perspectives on the responses of people with intellectual disabilities, (iv) Approaches to supporting people with intellectual disabilities and (v) Carers' perspectives on support. Conclusions Supporting people with intellectual disabilities through bereavement is an emotionally demanding task for carers. The support needs of carers need to be acknowledged and addressed in order to ensure that adequate support is available to people with intellectual disabilities following bereavement.
Journal
Journal of Applied Research in Intellectual Disabilities – Wiley
Published: May 1, 2013