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The Challenge Data and information are essential resources in any healthcare system that aspires to deliver high quality clinical care, undertake research and clinical trials, make informed commissioning decisions and support public health. Yet despite the obvious need of so many, most large‐scale healthcare economies across the world have struggled to create data systems to meet these demands (Schneeweiss ). This is not perhaps surprising because the problem is a very hard one – clinical medicine is complex. A single patient may easily have many thousands of different data items from multiple different clinical events stored on disparate clinical systems. These systems, even when from the same manufacturer, are often not designed to share data with others from the same provider, let alone with different manufactures within or outside one organisation. Privacy and consent issues, the inherent complexities of diagnosis, treatment options and clinical management when combined with the Balkanisation of healthcare providers further confound data sharing and linkage. Despite this rather bleak global view, there is widespread recognition that these challenges must be overcome if we are going to contain healthcare costs, improve clinical outcomes, look after an aging population and adapt to the changes that come
European Journal of Cancer Care – Wiley
Published: Jan 1, 2014
Keywords: ; ; ;
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