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INTRODUCTIONFollow‐up care aims to provide cancer surveillance with early detection of recurring cancers and to address treatment complications as well as other health issues in survivorship (de Visscher & Manni, 1994; Hewitt et al., 2006; Pagh et al., 2013; Schwartz et al., 2003). It is assumed that follow‐up care fulfils these aims; however, little evidence supports routine surveillance detecting curable disease early enough to improve survival (Ghezzi & Magnanini, 1994; Jefford et al., 2013). Cancer survivors, especially head and neck patients, are a diverse patient population, suggesting that a particular follow‐up regimen may not meet all patients' follow‐up needs (Hall et al., 2000; Schwartz et al., 2003).In our previous report of 173 surveyed head and neck cancer patients at 1 year after treatment (Brennan et al., 2019), we described their demography, treatment details, disease characteristics, psychological functioning, well‐being and quality of life as well as their attitudes, needs, preferences and fears during follow‐up. We found a diverse range of needs and preferences for follow‐up care. Follow‐up needs varied for undergoing tests, receiving information on healthy living and having discussions on pain and fear. Preferences for the frequency of appointments and providers of care were mixed. Patient characteristics such as psychosocial and well‐being measures (functional status, anxiety, fear of recurrence,
European Journal of Cancer Care – Wiley
Published: May 1, 2022
Keywords: follow‐up care; head and neck cancer; patient needs; patient preference; squamous cell carcinoma; survivorship
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