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Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome

Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome Published for the British Institute of Learning Disabilities Journal of Applied Research in Intellectual Disabilities 2017, 30, 395–406 Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome † ‡,§ ¶ Barbara Barter*, Richard Patrick Hastings , Rebecca Williams and Jaci C. Huws *Mental Health in Learning Disability, South London and Maudsley, NHS Foundation Trust, SE5 8AZ, London, UK; Cerebra Chair of Family Research, CEDAR (Centre for Educational Development Appraisal and Research), University of Warwick, Coventry, CV4 7AL, UK; ‡ § ¶ Uwch Seicolegydd Ymgynghoro; Gwasanaethau Arbennigol Plant, Bwrdd Iechyd Prifysgol, Betsi Cadwaladr, University Health Board; School of Healthcare Sciences, Prifysgol Bangor University, North Wales, UK Accepted for publication 29 January 2016 Background The perceptions of individuals with Down Conclusions The findings suggest that individuals with syndrome are conspicuously absent in discussions about intellectual disabilities can make a valuable contribution the use of prenatal testing. to discussions surrounding the use of prenatal testing. Method Eight individuals with Down syndrome were Implications for clinical practice include the use of interviewed about their views and experience of the information about Down syndrome given to prospective topic of prenatal testing. parents, and the possible psychological impact of Results Interpretative http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Journal of Applied Research in Intellectual Disabilities Wiley

Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome

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References (45)

Publisher
Wiley
Copyright
Copyright © 2017 John Wiley & Sons Ltd
ISSN
1360-2322
eISSN
1468-3148
DOI
10.1111/jar.12256
Publisher site
See Article on Publisher Site

Abstract

Published for the British Institute of Learning Disabilities Journal of Applied Research in Intellectual Disabilities 2017, 30, 395–406 Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome † ‡,§ ¶ Barbara Barter*, Richard Patrick Hastings , Rebecca Williams and Jaci C. Huws *Mental Health in Learning Disability, South London and Maudsley, NHS Foundation Trust, SE5 8AZ, London, UK; Cerebra Chair of Family Research, CEDAR (Centre for Educational Development Appraisal and Research), University of Warwick, Coventry, CV4 7AL, UK; ‡ § ¶ Uwch Seicolegydd Ymgynghoro; Gwasanaethau Arbennigol Plant, Bwrdd Iechyd Prifysgol, Betsi Cadwaladr, University Health Board; School of Healthcare Sciences, Prifysgol Bangor University, North Wales, UK Accepted for publication 29 January 2016 Background The perceptions of individuals with Down Conclusions The findings suggest that individuals with syndrome are conspicuously absent in discussions about intellectual disabilities can make a valuable contribution the use of prenatal testing. to discussions surrounding the use of prenatal testing. Method Eight individuals with Down syndrome were Implications for clinical practice include the use of interviewed about their views and experience of the information about Down syndrome given to prospective topic of prenatal testing. parents, and the possible psychological impact of Results Interpretative

Journal

Journal of Applied Research in Intellectual Disabilities – Wiley

Published: Mar 1, 2017

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