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Shearn Shearn, Todd Todd (1997)
Parental work: an account of the day‐to‐day activities of parents of adults with learning disabilitiesJournal of Intellectual Disability Research, 41
Smaje Smaje (1996)
The ethnic patterning of health: new directions for theory and researchSociology of Health and Illness, 18
When Tim came along, all our experience as parents counted for nothing. Here was I bringing my beautiful baby – my third baby – home from hospital and his Dad and his brothers and I weren’t going to be enough for him. We weren't going to be able to embark on this adventure on our own and we would have to bring assorted strangers along for the ride. (Mother of a 7‐year‐old boy with Down's syndrome) For many families, an inevitable part of caring for a child or young adult with an intellectual disability may be just an acquisition of professionals and professional services into their lives. They may also discover that how well they can function as a family may depend on the quality of relationship they can forge with those professionals and the usefulness of the services those professionals can offer them ( Dale 1996 ). The harsh reality is that there is little or nothing families can do to change the disability that their family member has acquired. However, what concerns many families is the perception that they also have little power or influence over the type or quality of the services offered to support
Journal of Applied Research in Intellectual Disabilities – Wiley
Published: Sep 1, 2003
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