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IntroductionAs individuals with intellectual and developmental disabilities become adults, services are required to meet their needs. Although parents of individuals with intellectual and developmental disabilities advocate for services throughout their children's lifespan (Haveman et al. ), retaining services in adulthood can be difficult. Needed services can include supported employment, housing, day programmes, health care and leisure activities. Because of the limited funding for adult services and the increasing number of individuals with intellectual and developmental disabilities eligible for those services within the United States (Braddock et al. ), many adults with intellectual and developmental disabilities have high unmet service needs.Unfortunately, across the United States, more than 76 677 individuals with intellectual and developmental disabilities are waiting for services (Research and Training Center on Community Living, ). Indeed, 41 states have waiting lists for adults with intellectual and developmental disabilities to receive services via the Home and Community‐Based Services (HCBS) waiver (Research and Training Center on Community Living, ). The HCBS waiver reimburses states for providing community‐based supports including employment, transportation and therapies. While waiting for services, individuals with intellectual and developmental disabilities may make little progress (Taylor & Hodapp ), their ageing parents may experience greater caregiving burden (Heller et al. ) and both
Journal of Applied Research in Intellectual Disabilities – Wiley
Published: Sep 1, 2017
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