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Development and psychometric evaluation of a lymphoedema self‐management behaviour questionnaire for breast cancer patients

Development and psychometric evaluation of a lymphoedema self‐management behaviour questionnaire... INTRODUCTIONBreast cancer‐related lymphoedema (BCRL) is one of the major complications suffered by breast cancer survivors and mainly manifests as upper limb swelling (He et al., 2020). The incidence of BCRL varies widely in different studies, depending on the patient characteristics, diagnostic methods and criteria, and recent reviews suggest that it is between 3% and 36.7% (Lin et al., 2021). BCRL has a significant impact on the physiologic and psychological well‐being of breast cancer patients (Eaton et al., 2020; Kalemikerakis et al., 2021). Patients at risk of lymphoedema need to make lifestyle changes in many ways to prevent lymphoedema, which can bring them great inconvenience, stress, and psychological distress (Sayegh et al., 2017), and one study found that more than 50% of breast cancer survivors were very concerned about their risk of lymphoedema (McLaughlin et al., 2013). Depending on the degree of lymphoedema, patients may experience physical symptoms such as upper extremity numbness, pain, swelling, and limited mobility, as well as negative emotions such as anxiety, depression, and fear (Acebedo et al., 2021). In addition, they also encounter a variety of challenges in their lives due to BCRL, such as reduction of housework, unemployment, social withdrawal, and isolation (Acebedo et al., 2021; Arikan Dönmez et al., 2021; Sun et http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png European Journal of Cancer Care Wiley

Development and psychometric evaluation of a lymphoedema self‐management behaviour questionnaire for breast cancer patients

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Publisher
Wiley
Copyright
© 2022 John Wiley & Sons Ltd
ISSN
0961-5423
eISSN
1365-2354
DOI
10.1111/ecc.13743
Publisher site
See Article on Publisher Site

Abstract

INTRODUCTIONBreast cancer‐related lymphoedema (BCRL) is one of the major complications suffered by breast cancer survivors and mainly manifests as upper limb swelling (He et al., 2020). The incidence of BCRL varies widely in different studies, depending on the patient characteristics, diagnostic methods and criteria, and recent reviews suggest that it is between 3% and 36.7% (Lin et al., 2021). BCRL has a significant impact on the physiologic and psychological well‐being of breast cancer patients (Eaton et al., 2020; Kalemikerakis et al., 2021). Patients at risk of lymphoedema need to make lifestyle changes in many ways to prevent lymphoedema, which can bring them great inconvenience, stress, and psychological distress (Sayegh et al., 2017), and one study found that more than 50% of breast cancer survivors were very concerned about their risk of lymphoedema (McLaughlin et al., 2013). Depending on the degree of lymphoedema, patients may experience physical symptoms such as upper extremity numbness, pain, swelling, and limited mobility, as well as negative emotions such as anxiety, depression, and fear (Acebedo et al., 2021). In addition, they also encounter a variety of challenges in their lives due to BCRL, such as reduction of housework, unemployment, social withdrawal, and isolation (Acebedo et al., 2021; Arikan Dönmez et al., 2021; Sun et

Journal

European Journal of Cancer CareWiley

Published: Nov 1, 2022

Keywords: breast cancer; factor analysis; lymphoedema self‐management; psychometrics; questionnaire; structural equation model

References