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Development and psychometric evaluation of a lymphoedema self‐management behaviour questionnaire for breast cancer patients

Development and psychometric evaluation of a lymphoedema self‐management behaviour questionnaire... INTRODUCTIONBreast cancer‐related lymphoedema (BCRL) is one of the major complications suffered by breast cancer survivors and mainly manifests as upper limb swelling (He et al., 2020). The incidence of BCRL varies widely in different studies, depending on the patient characteristics, diagnostic methods and criteria, and recent reviews suggest that it is between 3% and 36.7% (Lin et al., 2021). BCRL has a significant impact on the physiologic and psychological well‐being of breast cancer patients (Eaton et al., 2020; Kalemikerakis et al., 2021). Patients at risk of lymphoedema need to make lifestyle changes in many ways to prevent lymphoedema, which can bring them great inconvenience, stress, and psychological distress (Sayegh et al., 2017), and one study found that more than 50% of breast cancer survivors were very concerned about their risk of lymphoedema (McLaughlin et al., 2013). Depending on the degree of lymphoedema, patients may experience physical symptoms such as upper extremity numbness, pain, swelling, and limited mobility, as well as negative emotions such as anxiety, depression, and fear (Acebedo et al., 2021). In addition, they also encounter a variety of challenges in their lives due to BCRL, such as reduction of housework, unemployment, social withdrawal, and isolation (Acebedo et al., 2021; Arikan Dönmez et al., 2021; Sun et http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png European Journal of Cancer Care Wiley

Development and psychometric evaluation of a lymphoedema self‐management behaviour questionnaire for breast cancer patients

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Publisher
Wiley
Copyright
© 2022 John Wiley & Sons Ltd
ISSN
0961-5423
eISSN
1365-2354
DOI
10.1111/ecc.13743
Publisher site
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Abstract

INTRODUCTIONBreast cancer‐related lymphoedema (BCRL) is one of the major complications suffered by breast cancer survivors and mainly manifests as upper limb swelling (He et al., 2020). The incidence of BCRL varies widely in different studies, depending on the patient characteristics, diagnostic methods and criteria, and recent reviews suggest that it is between 3% and 36.7% (Lin et al., 2021). BCRL has a significant impact on the physiologic and psychological well‐being of breast cancer patients (Eaton et al., 2020; Kalemikerakis et al., 2021). Patients at risk of lymphoedema need to make lifestyle changes in many ways to prevent lymphoedema, which can bring them great inconvenience, stress, and psychological distress (Sayegh et al., 2017), and one study found that more than 50% of breast cancer survivors were very concerned about their risk of lymphoedema (McLaughlin et al., 2013). Depending on the degree of lymphoedema, patients may experience physical symptoms such as upper extremity numbness, pain, swelling, and limited mobility, as well as negative emotions such as anxiety, depression, and fear (Acebedo et al., 2021). In addition, they also encounter a variety of challenges in their lives due to BCRL, such as reduction of housework, unemployment, social withdrawal, and isolation (Acebedo et al., 2021; Arikan Dönmez et al., 2021; Sun et

Journal

European Journal of Cancer Care – Wiley

Published: Nov 1, 2022

Keywords: breast cancer; factor analysis; lymphoedema self‐management; psychometrics; questionnaire; structural equation model

References

  • Breast cancer‐related lymphedema in Hispanic women: A phenomenological study
    Acebedo, J. C.; Haas, B. K.; Hermanns, M.
  • Evaluation of methods used for estimating content validity
    Almanasreh, E.; Moles, R.; Chen, T. F.
  • Lived experiences for supportive care needs of women with breast cancer‐related lymphedema: A phenomenological study
    Arikan Dönmez, A.; Kuru Alici, N.; Borman, P.
  • ONS guidelines™ for cancer treatment‐related lymphedema
    Armer, J. M.; Ostby, P. L.; Ginex, P. K.; Beck, M.; Deng, J.; Fu, M. R.; Lasinski, B. B.; Lockwood, S.; Poage, E.; White, J.; Maloney, C.; Moriarty, K. A.; Vrabel, M.; Morgan, R. L.
  • Exploratory structural equation modeling
    Asparouhov, T.; Muthén, B.
  • Self‐efficacy: Toward a unifying theory of behavioral change
    Bandura, A.
  • Prescription and adherence to lymphedema self‐care modalities among women with breast cancer‐related lymphedema
    Brown, J. C.; Cheville, A. L.; Tchou, J. C.; Harris, S. R.; Schmitz, K. H.
  • Development and psychometric testing of a breast cancer survivor self‐efficacy scale
    Champion, V. L.; Ziner, K. W.; Monahan, P. O.; Stump, T. E.; Cella, D.; Smith, L. G.; Sledge, G. W.
  • A qualitative insight into self‐management experience among Chinese breast cancer survivors
    Cheng, H.; Sit, J. W. H.; Cheng, K. K. F.
  • The Dutch lymphedema guidelines based on the international classification of functioning, disability, and health and the chronic care model
    Damstra, R. J.; Halk, A. B.
  • Development of the breast cancer related lymphedema self‐care scale
    Deveci, Z.; Karayurt, Ö.; Bilik, O.; Eyigör, S.
  • Self‐care practices, patient education in women with breast cancer‐related lymphedema
    Deveci, Z.; Karayurt, Ö.; Eyigör, S.
  • Scale development: Theory and applications
    DeVellis, R. F.; Thorpe, C. T.
  • The psychosocial impact of lymphedema‐related distress among breast cancer survivors in the WHEL study
    Dominick, S. A.; Natarajan, L.; Pierce, J. P.; Madanat, H.; Madlensky, L.
  • Psychosocial issues associated with breast cancer‐related lymphedema: A literature review
    Eaton, L. H.; Narkthong, N.; Hulett, J. M.
  • Focus on psychometrics. Aspects of item analysis
    Ferketich, S.
  • Self‐management: A comprehensive approach to management of chronic conditions
    Grady, P. A.; Gough, L. L.
  • Lymphedema in survivors of breast cancer
    He, L.; Qu, H.; Wu, Q.; Song, Y.
  • Exploring patient perception of success and benefit in self‐management of breast cancer‐related arm lymphoedema
    Jeffs, E.; Ream, E.; Shewbridge, A.; Cowan‐Dickie, S.; Crawshaw, D.; Huit, M.; Wiseman, T.
  • Critical examination of skin care self‐management in lymphoedema
    Jones, A.; Woods, M.; Malhotra, K.
  • Diagnosis, treatment and quality of life in patients with cancer‐related lymphedema
    Kalemikerakis, I.; Evaggelakou, A.; Kavga, A.; Vastardi, M.; Konstantinidis, T.; Govina, O.
  • Principles and practice of structural equation modeling
    Kline, R. B.
  • Loco‐regional therapy and the risk of breast cancer‐related lymphedema: A systematic review and meta‐analysis
    Lin, Y.; Xu, Y.; Wang, C.; Song, Y.; Huang, X.; Zhang, X.; Sun, Q.
  • Self‐management strategies for risk reduction of subclinical and mild stage of breast cancer‐related lymphedema: A longitudinal, quasi‐experimental study
    Liu, F.; Li, F.; Fu, M. R.; Zhao, Q.; Wang, Y.; Pang, D.; Lu, Q.
  • Self‐management education: History, definition, outcomes, and mechanisms
    Lorig, K. R.; Holman, H.
  • Effectiveness of mobile health‐based self‐management interventions in breast cancer patients: A meta‐analysis
    Luo, X.; Chen, Y.; Chen, J.; Zhang, Y.; Li, M.; Xiong, C.; Yan, J.
  • Principles and practice in reporting structural equation analyses
    McDonald, R. P.; Ho, M.‐H. R.
  • Trends in risk reduction practices for the prevention of lymphedema in the first 12 months after breast cancer surgery
    McLaughlin, S. A.; Bagaria, S.; Gibson, T.; Arnold, M.; Diehl, N.; Crook, J.; Nguyen, J.
  • Chronic disease self‐management: A hybrid concept analysis
    Miller, W. R.; Lasiter, S.; Bartlett Ellis, R.; Buelow, J. M.
  • Development and validity testing of an arthritis self‐management assessment tool
    Oh, H.; Han, S.; Kim, S.; Seo, W.
  • Surveillance recommendations in reducing risk of and optimally managing breast cancer‐related lymphedema
    Ostby, P. L.; Armer, J. M.; Dale, P. S.; Van Loo, M. J.; Wilbanks, C. L.; Stewart, B. R.
  • Patient perceptions of barriers to self‐management of breast cancer‐related lymphedema
    Ostby, P. L.; Armer, J. M.; Smith, K.; Stewart, B. R.
  • SPSS survival manual: A step by step guide to data analysis using IBM SPSS
    Pallant, J.
  • Making sense of factor analysis: The use of factor analysis for instrument development in health care research
    Pett, M. A.; Lackey, N. R.; Sullivan, J. J.
  • Nursing research: Generating and assessing evidence for nursing practice
    Polit, D. F.; Beck, C. T.
  • Measurement and the measurement of change: A primer for the health professions
    Polit, D. F.; Yang, F.
  • Self‐management of lymphedema: A systematic review of the literature from 2004 to 2011
    Ridner, S. H.; Fu, M. R.; Wanchai, A.; Stewart, B. R.; Armer, J. M.; Cormier, J. N.
  • Diagnostic methods, risk factors, prevention, and management of breast cancer‐related lymphedema: Past, present, and future directions
    Sayegh, H. E.; Asdourian, M. S.; Swaroop, M. N.; Brunelle, C. L.; Skolny, M. N.; Salama, L.; Taghian, A. G.
  • The MOS social support survey
    Sherbourne, C. D.; Stewart, A. L.
  • Factors predicting adherence to risk management behaviors of women at increased risk for developing lymphedema
    Sherman, K. A.; Miller, S. M.; Roussi, P.; Taylor, A.
  • Translation, adaptation and validation of instruments or scales for use in cross‐cultural health care research: A clear and user‐friendly guideline
    Sousa, V. D.; Rojjanasrirat, W.
  • The influence of breast cancer related lymphedema on women's return‐to‐work
    Sun, Y.; Shigaki, C. L.; Armer, J. M.
  • Current understanding of pathological mechanisms of lymphedema
    Sung, C. J.; Wang, S. X.; Hsu, J. F.; Yu, R. P.; Wong, A. K.
  • The effectiveness of lymphedema self‐management in the prevention of breast cancer‐related lymphedema and quality of life: A randomized controlled trial
    Temur, K.; Kapucu, S.
  • Evidence summary for self‐management of lymphedema in breast cancer patients
    Wei, X. X.; Fu, X.; Shen, A. M.; Wang, Y. J.; Zhang, L. C.; Lu, Q.
  • Questionnaire statistical analysis practice: SPSS operation and application
    Wu, M. L.
  • Translation, validity, and reliability of the Chinese version of the breast cancer survivor self‐efficacy scale in China
    Yuan, X.; Wu, F.; Howell, D.; Yuan, C.
  • Breast cancer‐related lymphedema patient and healthcare professional experiences in lymphedema self‐management: A qualitative study
    Zhao, H.; Wu, Y.; Zhou, C.; Li, W.; Li, X.; Chen, L.
  • Investigation on postoperative lymphedema‐related knowledge, risk factors and behaviors of breast cancer patients
    Zhao, Q.; Li, F.; Lu, Q.