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Desires vs. conditions: A qualitative study exploring the factors affecting the place of death of child with cancer in Turkey

Desires vs. conditions: A qualitative study exploring the factors affecting the place of death of... INTRODUCTIONDespite improvements in paediatric cancer treatment and care, it is still the leading cause of death for children and adolescents (Kaye, DeMarsh, et al., 2018; World Health Organization, 2021). None of the parents want to see their child is dying, but when there is no chance to cure, they try to do their best to ensure that their child dies in peace. Place of death is an important factor influencing the quality of end of life care of dying children. However, choosing a place of death is one of the most difficult decisions of end‐of‐life care (Kaye, DeMarsh, et al., 2018). Home, hospices or hospitals may be preferred by families, children or healthcare professionals to maintain end‐of‐life care for different reasons. They mostly prefer home care because it provides an environment where they can be together as a family, move freely, lead a normal life and protect their privacy (Castor et al., 2018; Kassam et al., 2014; Niswander et al., 2014). However, it may be necessary to maintain the care of the child in the hospital for some reasons such as the lack of a suitable environment at home, the health conditions of the child or the inadequacy of hospice, palliative and home care services http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png European Journal of Cancer Care Wiley

Desires vs. conditions: A qualitative study exploring the factors affecting the place of death of child with cancer in Turkey

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Publisher
Wiley
Copyright
© 2022 John Wiley & Sons Ltd
ISSN
0961-5423
eISSN
1365-2354
DOI
10.1111/ecc.13703
Publisher site
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Abstract

INTRODUCTIONDespite improvements in paediatric cancer treatment and care, it is still the leading cause of death for children and adolescents (Kaye, DeMarsh, et al., 2018; World Health Organization, 2021). None of the parents want to see their child is dying, but when there is no chance to cure, they try to do their best to ensure that their child dies in peace. Place of death is an important factor influencing the quality of end of life care of dying children. However, choosing a place of death is one of the most difficult decisions of end‐of‐life care (Kaye, DeMarsh, et al., 2018). Home, hospices or hospitals may be preferred by families, children or healthcare professionals to maintain end‐of‐life care for different reasons. They mostly prefer home care because it provides an environment where they can be together as a family, move freely, lead a normal life and protect their privacy (Castor et al., 2018; Kassam et al., 2014; Niswander et al., 2014). However, it may be necessary to maintain the care of the child in the hospital for some reasons such as the lack of a suitable environment at home, the health conditions of the child or the inadequacy of hospice, palliative and home care services

Journal

European Journal of Cancer Care – Wiley

Published: Nov 1, 2022

Keywords: cancer; children; death; end of life; place; qualitative

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