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Death, Dying and Intellectual Disability Research

Death, Dying and Intellectual Disability Research In the 10 years since it was claimed that death and dying were perhaps too emotive and certainly too incongruous for intellectual disability researchers (Todd ), there has been a small but growing international interest in this field of study. This changing attitude towards death and dying within intellectual disability has been marked by two key events. Firstly, a changed view on what counts as a ‘significant death’. Secondly, there has been an acceptance that the deaths and periods of dying people with intellectual disability present important personal, academic and professional challenges. Early work in this sensitive field tended to be concerned with bereavement and, in particular, the impact the death of a loved one, usually a family member, had upon the life and well‐being of people with intellectual disability. At this time, death itself was not so much the focus for scholarly activity. Rather, it was a device used to cement the notion that people with intellectual disability had emotional selves, capable of reflection and feeling. Within this bereavement literature, seldom was it entertained that the death of people with intellectual disability might have potent meaning for someone who in turn loved them. That death comes to http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Journal of Applied Research in Intellectual Disabilities Wiley

Death, Dying and Intellectual Disability Research

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References (3)

Publisher
Wiley
Copyright
Copyright © 2013 Blackwell Publishing Ltd
ISSN
1360-2322
eISSN
1468-3148
DOI
10.1111/jar.12027
pmid
23580204
Publisher site
See Article on Publisher Site

Abstract

In the 10 years since it was claimed that death and dying were perhaps too emotive and certainly too incongruous for intellectual disability researchers (Todd ), there has been a small but growing international interest in this field of study. This changing attitude towards death and dying within intellectual disability has been marked by two key events. Firstly, a changed view on what counts as a ‘significant death’. Secondly, there has been an acceptance that the deaths and periods of dying people with intellectual disability present important personal, academic and professional challenges. Early work in this sensitive field tended to be concerned with bereavement and, in particular, the impact the death of a loved one, usually a family member, had upon the life and well‐being of people with intellectual disability. At this time, death itself was not so much the focus for scholarly activity. Rather, it was a device used to cement the notion that people with intellectual disability had emotional selves, capable of reflection and feeling. Within this bereavement literature, seldom was it entertained that the death of people with intellectual disability might have potent meaning for someone who in turn loved them. That death comes to

Journal

Journal of Applied Research in Intellectual Disabilities – Wiley

Published: May 1, 2013

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