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Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa

Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa Published for the British Institute of Learning Disabilities Journal of Applied Research in Intellectual Disabilities 2016, 29, 531–541 Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa ,† †,‡ Judith McKenzie* and Roy McConkey *School of Health and Rehabilitation Sciences, Groot Schuur Hospital, Cape Town, South Africa; Disability Studies Programme, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa; Developmental Disabilities, University of Ulster, Newtown Abbey, UK Accepted for publication 29 June 2015 Background Internationally adults with intellectual that women especially experience. They recognize the disability are largely cared for by their families, limited personal growth opportunities for people with especially in low- to middle-income countries (LAMIC). intellectual disability that increases the caregiving Compared to high-income countries, little is known burden. FCGs identify supports and resources in the about their experiences in LAMIC such as South Africa. community that assist them with their care Methods Focus group discussions were carried out with responsibilities but often feel let down by services. 37 family caregivers (FCGs) in the Cape Town Conclusions Improved family supports appropriate to the metropole. These were transcribed and analysed resources in LAMIC are needed especially when thematically. Core categories http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Journal of Applied Research in Intellectual Disabilities Wiley

Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa

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References (28)

Publisher
Wiley
Copyright
Copyright © 2016 John Wiley & Sons Ltd
ISSN
1360-2322
eISSN
1468-3148
DOI
10.1111/jar.12209
pmid
26358760
Publisher site
See Article on Publisher Site

Abstract

Published for the British Institute of Learning Disabilities Journal of Applied Research in Intellectual Disabilities 2016, 29, 531–541 Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa ,† †,‡ Judith McKenzie* and Roy McConkey *School of Health and Rehabilitation Sciences, Groot Schuur Hospital, Cape Town, South Africa; Disability Studies Programme, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa; Developmental Disabilities, University of Ulster, Newtown Abbey, UK Accepted for publication 29 June 2015 Background Internationally adults with intellectual that women especially experience. They recognize the disability are largely cared for by their families, limited personal growth opportunities for people with especially in low- to middle-income countries (LAMIC). intellectual disability that increases the caregiving Compared to high-income countries, little is known burden. FCGs identify supports and resources in the about their experiences in LAMIC such as South Africa. community that assist them with their care Methods Focus group discussions were carried out with responsibilities but often feel let down by services. 37 family caregivers (FCGs) in the Cape Town Conclusions Improved family supports appropriate to the metropole. These were transcribed and analysed resources in LAMIC are needed especially when thematically. Core categories

Journal

Journal of Applied Research in Intellectual DisabilitiesWiley

Published: Nov 1, 2016

Keywords: ; ; ;

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