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Independent home use of Brain Painting improves quality of life of two artists in the locked-in state diagnosed with amyotrophic lateral sclerosis

Independent home use of Brain Painting improves quality of life of two artists in the locked-in... This study reports the use of Brain Painting, a BCI application for creative expression, which was implemented at the homes of two end-users in the locked-in state. Both are artists who had gradually lost the ability to paint after being diagnosed with amyotrophic lateral sclerosis. The usability of the BCI in expert-independent use was evaluated by the end-users. End-user HP painted in 152 sessions within 22 months (in total: 255 h), end-user JT in 158 sessions within 15 months (in total: 168 h). With an accuracy of 70–90%, BCI control was mostly moderate to high. Both end-users were highly satisfied with the BCI as an assistive device. Brain Painting re-enabled them to be creatively active in their home environment and thus improved their feelings of happiness, usefulness, self-esteem, well-being, and consequently quality of life, and supports social inclusion. This long-term evaluation study suggests that BCI is a valuable tool for people in the locked-in state. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Brain-Computer Interfaces Taylor & Francis

Independent home use of Brain Painting improves quality of life of two artists in the locked-in state diagnosed with amyotrophic lateral sclerosis

Independent home use of Brain Painting improves quality of life of two artists in the locked-in state diagnosed with amyotrophic lateral sclerosis

Abstract

This study reports the use of Brain Painting, a BCI application for creative expression, which was implemented at the homes of two end-users in the locked-in state. Both are artists who had gradually lost the ability to paint after being diagnosed with amyotrophic lateral sclerosis. The usability of the BCI in expert-independent use was evaluated by the end-users. End-user HP painted in 152 sessions within 22 months (in total: 255 h), end-user JT in 158 sessions within 15 months (in...
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Publisher
Taylor & Francis
Copyright
© 2015 Taylor & Francis
ISSN
2326-2621
eISSN
2326-263x
DOI
10.1080/2326263X.2015.1100048
Publisher site
See Article on Publisher Site

Abstract

This study reports the use of Brain Painting, a BCI application for creative expression, which was implemented at the homes of two end-users in the locked-in state. Both are artists who had gradually lost the ability to paint after being diagnosed with amyotrophic lateral sclerosis. The usability of the BCI in expert-independent use was evaluated by the end-users. End-user HP painted in 152 sessions within 22 months (in total: 255 h), end-user JT in 158 sessions within 15 months (in total: 168 h). With an accuracy of 70–90%, BCI control was mostly moderate to high. Both end-users were highly satisfied with the BCI as an assistive device. Brain Painting re-enabled them to be creatively active in their home environment and thus improved their feelings of happiness, usefulness, self-esteem, well-being, and consequently quality of life, and supports social inclusion. This long-term evaluation study suggests that BCI is a valuable tool for people in the locked-in state.

Journal

Brain-Computer InterfacesTaylor & Francis

Published: Apr 3, 2015

Keywords: brain-computer interface; independent home use; locked-in syndrome; amyotrophic lateral sclerosis; usability; user-centered design; end-user; creative expression

References