Access the full text.
Sign up today, get DeepDyve free for 14 days.
F. Gil, G. Costa, Inés Hilker, L. Benito (2012)
First anxiety, afterwards depression: psychological distress in cancer patients at diagnosis and after medical treatment.Stress and health : journal of the International Society for the Investigation of Stress, 28 5
Shu-Ching Chen, C. Liao, Chia-chin Lin, J. Chang, Y. Lai (2009)
Distress and care needs in newly diagnosed oral cavity cancer patients receiving surgery.Oral oncology, 45 9
A. Brédart, C. Bouleuc, S. Dolbeault (2005)
Doctor-patient communication and satisfaction with care in oncologyCurrent Opinion in Oncology, 17
M. Glajchen (2004)
The emerging role and needs of family caregivers in cancer care.The journal of supportive oncology, 2 2
C. Rodriguez, D. Blischak (2010)
Communication needs of nonspeaking hospitalized postoperative patients with head and neck cancer.Applied nursing research : ANR, 23 2
Andrew Harris, Manjree Garg, Xuebin Yang, Sheila Fisher, Sheila Fisher, Jennifer Kirkham, D. Smith, D. Martin-Hirsch, Alec High (2009)
Raman spectroscopy and advanced mathematical modelling in the discrimination of human thyroid cell linesHead & Neck Oncology, 1
Shu-Ching Chen, Y. Lai, C. Liao, Bing-Shen Huang, Chien-Yu Lin, K. Fan, J. Chang (2014)
Unmet supportive care needs and characteristics of family caregivers of patients with oral cancer after surgeryPsycho‐Oncology, 23
Nicholas James, Harry Daniels, Rubina Rahman, Christopher McConkey, Jan Derry, Annie Young (2007)
A study of information seeking by cancer patients and their carers.Clinical oncology (Royal College of Radiologists (Great Britain)), 19 5
Lori DuBenske, K. Wen, D. Gustafson, C. Guarnaccia, J. Cleary, Susan Dinauer, F. McTavish (2008)
Caregivers’ differing needs across key experiences of the advanced cancer disease trajectoryPalliative and Supportive Care, 6
AN Retoolingfor, Aging America (2008)
Retooling for an Aging America: Building the Health Care Workforce
M. Henry, Laura-Anne Habib, M. Morrison, Ji Yang, Xuejiao Li, Shiru Lin, A. Zeitouni, R. Payne, C. MacDonald, A. Mlynarek, K. Kost, M. Black, M. Hier (2013)
Head and neck cancer patients want us to support them psychologically in the posttreatment period: Survey resultsPalliative and Supportive Care, 12
M. Longacre (2013)
Cancer Caregivers Information Needs and Resource PreferencesJournal of Cancer Education, 28
M. Clayman, D. Roter, L. Wissow, K. Bandeen-Roche (2005)
Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits.Social science & medicine, 60 7
J. Eden, K. Maslow, M. Le, D. Blazer (2012)
IOM Recommendations from Retooling for an Aging America: Building the Health Care Workforce (2008)
D. Ronis, S. Duffy, K. Fowler, Mumtaz Khan, J. Terrell (2008)
Changes in quality of life over 1 year in patients with head and neck cancer.Archives of otolaryngology--head & neck surgery, 134 3
E. Hammerlid, M. Ahlner‐Elmqvist, K. Bjordal, A. Biörklund, J. Evensen, M. Boysen, M. Jannert, S. Kaasa, M. Sullivan, T. Westin (1999)
A prospective multicentre study in Sweden and Norway of mental distress and psychiatric morbidity in head and neck cancer patientsBritish Journal of Cancer, 80
(2015)
J Canc Educ
B. Murphy, S. Ridner, N. Wells, M. Dietrich (2007)
Quality of life research in head and neck cancer: a review of the current state of the science.Critical reviews in oncology/hematology, 62 3
J. Papadakos, M. McQuestion, Anandita Gokhale, Ali Damji, A. Trang, N. Abdelmutti, J. Ringash (2018)
Informational Needs of Head and Neck Cancer PatientsJournal of Cancer Education, 33
A. Wright, Baohui Zhang, A. Ray, J. Mack, E. Trice, T. Balboni, S. Mitchell, V. Jackson, S. Block, P. Maciejewski, H. Prigerson (2008)
Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment.JAMA, 300 14
D. Shin, Juhee Cho, D. Roter, S. Kim, Sang Sohn, Man-Soo Yoon, Young-Woo Kim, B. Cho, Jong-Hyock Park (2013)
Preferences for and experiences of family involvement in cancer treatment decision‐making: patient–caregiver dyads studyPsycho‐Oncology, 22
E. Basch, H. Thaler, W. Shi, Sofia Yakren, D. Schrag (2004)
Use of information resources by patients with cancer and their companionsCancer, 100
(2004)
National Alliance for Caregiving & AARP
Despite advances in treatment, head and neck cancer (HNC) patients often experience considerable functional impairment during and following treatment. As a result, family caregivers are essential in a patient’s recovery; however, few caregivers are well-prepared to handle the extensive caregiving needs of this patient population. To date, little is known about HNC caregivers’ informational needs in this role. Thus, we surveyed a sample of HNC caregivers about their informational needs including those related to interacting in the medical context as a caregiver and meeting patient needs. We also asked these caregivers their preferences for obtaining caregiving information. We conducted a cross-sectional study of 59 family caregivers for HNC patients who had completed radiation therapy at a comprehensive cancer center. The majority of caregivers (74.6 %) reported having high informational need at diagnosis related to interacting as a caregiver. Although the need for such information decreased over time, over half still had a high need for information at treatment end. Importantly, caregivers who desired information about reducing patient pain and distress also reported having greater informational needs on issues related to interacting in the medical context. Further, the caregivers most often preferred to receive information from health-care professionals as a first source. However, preferring an informal (e.g., Internet) resource at first was significantly associated with needing information on how to talk to a doctor or nurse. The development of evidence-based resources and tools for HNC caregivers as well as clinicians may help caregivers more effectively manage patient symptoms and warrants further attention. Further, Internet resources may represent an effective resource for providing caregivers with strategies toward enhancing communication with healthcare professionals.
Journal of Cancer Education – Springer Journals
Published: Apr 18, 2015
Read and print from thousands of top scholarly journals.
Already have an account? Log in
Bookmark this article. You can see your Bookmarks on your DeepDyve Library.
To save an article, log in first, or sign up for a DeepDyve account if you don’t already have one.
Copy and paste the desired citation format or use the link below to download a file formatted for EndNote
Access the full text.
Sign up today, get DeepDyve free for 14 days.
All DeepDyve websites use cookies to improve your online experience. They were placed on your computer when you launched this website. You can change your cookie settings through your browser.