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E. Meyer, M. Ritholz, J. Burns, R. Truog (2006)
Improving the Quality of End-of-Life Care in the Pediatric Intensive Care Unit: Parents' Priorities and RecommendationsPediatrics, 117
G. Colville, F. Orr, D. Gracey (2003)
"The worst journey of our lives": parents' experiences of a specialised paediatric retrieval service.Intensive & critical care nursing, 19 2
Janis Brown, Judith Ritchie (1990)
Nurses' perceptions of parent and nurse roles in caring for hospitalized children.Children's health care : journal of the Association for the Care of Children's Health, 19 1
L. LaMontagne, B. Johnson, J. Hepworth (1995)
Evolution of parental stress and coping processes: a framework for critical care practice.Journal of pediatric nursing, 10 4
Natalie Waning, C. Kleiber, Barbara Freyenberger (2005)
Development and implementation of a protocol for transfers out of the pediatric intensive care unit.Critical care nurse, 25 3
B. Cejer (2007)
The needs and experiences of long term ventilated children and their families.Paediatric nursing, 19 5
F. Carnevale, P. Canoui, R. Cremer, C. Farrell, Amélie Doussau, Marie-Josée Seguin, P. Hubert, F. Leclerc, J. Lacroix (2007)
Parental involvement in treatment decisions regarding their critically ill child: A comparative study of France and Quebec*Pediatric Critical Care Medicine, 8
L. Shields, J. Pratt, L. Davis, J. Hunter (2007)
Family-centred care for children in hospital.The Cochrane database of systematic reviews, 1
Anita Jarvis (1998)
Parental presence during resuscitation: attitudes of staff on a paediatric intensive care unit.Intensive & critical care nursing, 14 1
A. Goodell (1979)
Perceptions of nurses toward parent participation on pediatric oncology unitsCancer Nursing, 2
Callaghan Ka (1959)
The Welfare of Children in HospitalBritish Medical Journal, 1
C. Haines, Helen Childs (2005)
Parental satisfaction with paediatric intensive care.Paediatric nursing, 17 7
L. Muir, P. George, L. Whitehead (2012)
Using the experiences of people with familial hypercholesterolaemia to help reduce the risk of cardiovascular disease: a qualitative systematic review.Journal of advanced nursing, 68 9
L. Bouvé, C. Rozmus, P. Giordano (1999)
Preparing parents for their child's transfer from the PICU to the pediatric floor.Applied nursing research : ANR, 12 3
Cleone Hart, R. Chesson (1998)
Children as consumersBMJ, 316
J. Rennick, L. McHarg, Melissa Dell'Api, C. Johnston, B. Stevens (2008)
Developing the Children’s Critical Illness Impact Scale: Capturing stories from children, parents, and staff*Pediatric Critical Care Medicine, 9
A. Diaz-Caneja, J. Gledhill, T. Weaver, S. Nadel, E. Garralda (2005)
A child’s admission to hospital: a qualitative study examining the experiences of parentsIntensive Care Medicine, 31
S. Playfor, David Thomas, I. Choonara (2000)
Recollection of children following intensive careArchives of Disease in Childhood, 83
Rhonda Board, N. Ryan-Wenger (2000)
State of the science on parental stress and family functioning in pediatric intensive care units.American journal of critical care : an official publication, American Association of Critical-Care Nurses, 9 2
(2008)
Joanna Briggs Institute reviewers’ Manual: 2008 edition
S. Linton, C. Grant, J. Pellegrini (2008)
Supporting families through discharge from PICU to the ward: the development and evaluation of a discharge information brochure for families.Intensive & critical care nursing, 24 6
E. Hall (2002)
Grandparenting - A Matter of Love and Care: A Review of the Literature 1990-2000International Journal for Human Caring, 6
K. Meert, S. Eggly, M. Pollack, K. Anand, J. Zimmerman, J. Zimmerman, J. Carcillo, C. Newth, J. Dean, D. Willson, Carol Nicholson (2008)
Parents’ perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit*Pediatric Critical Care Medicine, 9
Beverly Johnson (1990)
The changing role of families in health care.Children's health care : journal of the Association for the Care of Children's Health, 19 4
E. Hall (2005)
Danish parents' experiences when their new born or critically ill small child is transferred to the PICU-a qualitative study.Nursing in critical care, 10 2
K. Pitkala, M. Raivio, M. Laakkonen, Reijo Tilvis, Hannu Kautiainen, Timo Strandberg (2010)
Exercise rehabilitation on home-dwelling patients with Alzheimer's disease - a randomized, controlled trial. Study protocolTrials, 11
P. Tomlinson, E. Thomlinson, C. Peden-McAlpine, M. Kirschbaum (2002)
Clinical innovation for promoting family care in paediatric intensive care: demonstration, role modelling and reflective practice.Journal of advanced nursing, 38 2
M. Crowe, M. Inder, D. Carlyle, L. Wilson, L. Whitehead, A. Panckhurst, T. O'Brien, C. Frampton, P. Joyce (2012)
Nurse-led delivery of specialist supportive care for bipolar disorder: a randomized controlled trial.Journal of psychiatric and mental health nursing, 19 5
Chang Ti (1968)
[Maternal care and mental health].Hu li za zhi The journal of nursing, 15 3
K. Meert, Celia Thurston, Sherylyn Briller (2005)
The spiritual needs of parents at the time of their child’s death in the pediatric intensive care unit and during bereavement: A qualitative study*Pediatric Critical Care Medicine, 6
P. Tomlinson, P. Swiggum, B. Harbaugh (1999)
Identification of nurse-family intervention sites to decrease health-related family boundary ambiguity in PICU.Issues in comprehensive pediatric nursing, 22 1
G. Colville, Janet Darkins, J. Hesketh, Virginia Bennett, J. Alcock, J. Noyes (2009)
The impact on parents of a child's admission to intensive care: integration of qualitative findings from a cross-sectional study.Intensive & critical care nursing, 25 2
J. Noyes (2002)
Barriers that delay children and young people who are dependent on mechanical ventilators from being discharged from hospital.Journal of clinical nursing, 11 1
(1995)
The suffering human being
Marysia Shudy, Mary Almeida, Susan Ly, C. Landon, S. Groft, Tammara Jenkins, Carol Nicholson (2006)
Impact of Pediatric Critical Illness and Injury on Families: A Systematic Literature ReviewPediatrics, 118
S. Dampier, S. Campbell, D. Watson (2002)
An investigation of the hospital experiences of parents with a child in paediatric intensive careNursing Times Research, 7
F. Carnevale, P. Canouï, P. Hubert, C. Farrell, F. Leclerc, Amélie Doussau, Marie-Josée Seguin, J. Lacroix (2006)
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in FranceJournal of Child Health Care, 10
M. Foster, L. Whitehead, Patricia Maybee (2010)
Parents' and health professionals' perceptions of family centred care for children in hospital, in developed and developing countries: a review of the literature.International journal of nursing studies, 47 9
K. Meert, Sherylyn Briller, S. Schim, Celia Thurston (2008)
Exploring parents’ environmental needs at the time of a child’s death in the pediatric intensive care unit*Pediatric Critical Care Medicine, 9
C. Haines (2005)
Parents' experiences of living through their child's suffering from and surviving severe meningococcal disease.Nursing in critical care, 10 2
L. Shields, Huaqiong Zhou, J. Pratt, Marjory Taylor, J. Hunter, E. Pascoe (2012)
Family-centred care for hospitalised children aged 0-12 years.The Cochrane database of systematic reviews, 10
F. Carnevale (1999)
Striving to recapture our previous life: the experience of families with critically ill children.Official journal of the Canadian Association of Critical Care Nurses, 10 1
L. Shields, J. Pratt, J. Hunter (2006)
Family centred care: a review of qualitative studies.Journal of clinical nursing, 15 10
Michael Aldridge (2005)
Decreasing parental stress in the pediatric intensive care unit: one unit's experience.Critical care nurse, 25 6
Pauline Boss, Jan Greenberg (1984)
Family boundary ambiguity: a new variable in family stress theory.Family process, 23 4
C. Trivette, C. Dunst, Sam Allen, Lisa Wall (1993)
Family-centeredness of the Children's Health Care journal.Children's health care : journal of the Association for the Care of Children's Health, 22 4
J. Noyes (2000)
‘Ventilator‐dependent’ children who spend prolonged periods of time in intensive care units when they no longer have a medical need or want to be thereJournal of Clinical Nursing, 9
K. Meert, Sherylyn Briller, Stephanie Schim, Celia Thurston, A. Kabel (2009)
Examining the Needs of Bereaved Parents in the Pediatric Intensive Care Unit: A Qualitative StudyDeath Studies, 33
P. Benner, J. Wrubel (1989)
The Primacy of Caring: Stress and Coping in Health and Illness
K. Anderson, P. Tomlinson (1992)
The family health system as an emerging paradigmatic view for nursing.Image--the journal of nursing scholarship, 24 1
R. Sanders (2001)
Caring for ventilated children at home.Nursing times, 97 39
E. Purssell (1995)
Living With a Sick Child in HospitalJournal of Advanced Nursing, 21
J. Noyes, H. Hartmann, M. Samuels, D. Southall (1999)
The experiences and views of parents who care for ventilator-dependent children.Journal of clinical nursing, 8 4
P. Boss (1994)
Sourcebook of family theories and methods : a contextual approachJournal of Marriage and Family, 56
R. Jefferson, B. Paterson (2001)
Efficient or family-centred? Practitioners' goals in decisions regarding parental presence during invasive procedures.Dynamics, 12 3
M. Sharman, K. Meert, A. Sarnaik (2005)
What influences parents’ decisions to limit or withdraw life support?*Pediatric Critical Care Medicine, 6
R. Bousso, M. Angelo (2003)
The Family in the Intensive Care Unit: Living the Possibility of Losing a ChildJournal of Family Nursing, 9
P. Hubert, P. Canoui, R. Cremer, F. Leclerc (2005)
[Withholding or withdrawing life saving treatment in pediatric intensive care unit: GFRUP guidelines].Archives de pediatrie : organe officiel de la Societe francaise de pediatrie, 12 10
Jane Noyes (2000)
Enabling young 'ventilator-dependent' people to express their views and experiences of their care in hospital.Journal of advanced nursing, 31 5
Andrea Smith, G. Hefley, K. Anand (2007)
Parent bed spaces in the PICU: effect on parental stress.Pediatric nursing, 33 3
Jane Noyes (1999)
The impact of knowing your child is critically ill: a qualitative study of mothers' experiences.Journal of advanced nursing, 29 2
E. Caruana (2008)
Family‐centred care for children in hospitalJournal of Advanced Nursing, 63
J. Corlett, A. Twycross (2006)
Negotiation of parental roles within family-centred care: a review of the research.Journal of clinical nursing, 15 10
S. Karande, A. Kelkar, M. Kulkarni (2005)
Recollections of Indian children after discharge from an intensive care unit*Pediatric Critical Care Medicine, 6
S. O’Haire, J. Blackford (2005)
Nurses' moral agency in negotiating parental participation in care.International journal of nursing practice, 11 6
(1987)
Family-centered care for children with special health care needs. Washington, DC: Association for the Care of Children’s Health
E. Hall (2004)
A double concern: grandmothers' experiences when a small grandchild is critically ill.Journal of pediatric nursing, 19 1
Rhonda Board (2005)
School-age children's perceptions of their PICU hospitalization.Pediatric nursing, 31 3
J. Noyes (1998)
A critique of studies exploring the experiences and needs of parents of children admitted to paediatric intensive care units.Journal of advanced nursing, 28 1
Doris Bartel, Arthur Engler, Joanne Natale, Vinita Misra, Amy Lewin, Jill Joseph (2000)
Working with families of suddenly and critically ill children: physician experiences.Archives of pediatrics & adolescent medicine, 154 11
I. Coyne (2008)
Children's participation in consultations and decision-making at health service level: a review of the literature.International journal of nursing studies, 45 11
B. Harbaugh, P. Tomlinson, M. Kirschbaum (2004)
PARENTS' PERCEPTIONS OF NURSES' CAREGIVING BEHAVIORS IN THE PEDIATRIC INTENSIVE CARE UNITIssues in Comprehensive Pediatric Nursing, 27
(2000)
Evolution of a model of stress, coping and discrete emotions
J. Rennick, J. Rashotte (2009)
Psychological outcomes in children following pediatric intensive care unit hospitalization: a systematic review of the researchJournal of Child Health Care, 13
E. Hall (2004)
A double concern: Danish grandfathers' experiences when a small grandchild is critically ill.Intensive & critical care nursing, 20 1
S. Meiers, P. Tomlinson (2003)
Family-nurse co-construction of meaning: a central phenomenon of family caring.Scandinavian journal of caring sciences, 17 2
K. Vehviläinen-Julkunen (1995)
NURSES AND FAMILIES. A Guide to Family Assessment and InterventionScandinavian Journal of Caring Sciences, 9
B. Melnyk, L. Small, M. Carno (2004)
The effectiveness of parent-focused interventions in improving coping/mental health outcomes of critically ill children and their parents: an evidence base to guide clinical practice.Pediatric nursing, 30 2
P. Lister (1994)
Interpretative Phenomenology - Embodiment, Caring, and Ethics in Health and Illness P Benner Interpretative Phenomenology - Embodiment, Caring, and Ethics in Health and Illness SAGE 372pp £19.95 0-8039-5723-8Nursing Standard, 8
Peter Elton (1993)
Smoking cessation interventions: is patient education effectiveJournal of Epidemiology and Community Health, 47
R. Lazarus (1970)
Psychological stress and the coping process
P. Hubert, P. Canouï, R. Cremer, F. Leclerc (2005)
Limitations et arrts de traitements actifs en ranimation pdiatrique: recommandations du GFRUPArchives De Pediatrie
S. Burgess, R. Pruitt, Patricia Maybee, Arnold Metz, J. Leuner (2003)
Rural and urban physicians' perceptions regarding the role and practice of the nurse practitioner, physician assistant, and certified nurse midwife.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association, 19 Suppl
Steve Bruce, H. Blumer (1988)
Symbolic Interactionism: Perspective and MethodBritish Journal of Sociology, 39
J. Hellmann (2007)
Matters of Spirituality at the End of Life in the Pediatric Intensive Care Unit, 2007
The delivery of family centered care (FCC) occurs within varied pediatric care settings with a belief that this model of care meets the psychosocial, emotional, and physical needs of the hospitalized child and family. The aim of this review was to explore the attitudes, experiences, and implementation of FCC from many studies and to facilitate a wider and more thorough understanding of this practice from a diverse sample of parents, hospitalized children, and their health care providers within a pediatric critical care setting. A metasynthesis is an integration of qualitative research findings based on a systematic review of the literature. Thirty original research articles focusing on family-centered care experiences from the hospitalized child’s, parents’, and health care providers’ perception published between 1998 and 2011 met the criteria for the review. Nine syntheses from 17 themes emerged from the synthesis of the literature: Prehospital, Entry into the Hospital, Journeying Through Unknown Waters, Information, Relationships, The hospital Environment, The Possibility of Death, Religion and Spirituality, and The Journey Home. The individual cultures of the critical care units helped create and reinforce the context of parental needs where satisfaction with communication, information, and relationships were interconnecting factors that helped maintain the positive or negative experiences for the parent, hospitalized child, and/or health care providers.
Journal of Family Nursing – SAGE
Published: Nov 1, 2013
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