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R. Harding, S. List, E. Epiphaniou, Hannah Jones (2012)
How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectivenessPalliative Medicine, 26
L. Funk, K. Stajduhar, C. Toye, S. Aoun, G. Grande, C. Todd (2010)
Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008)Palliative Medicine, 24
Sang Park, Young Kim, Samyong Kim, Jong Choi, Ho-Yeong Lim, Y. Choi, Y. Hong, S. Kim, D. Heo, Ki Kang, Hyun Jeong, C. Lee, D. Moon, J. Choi, In-Sik Kong, Y. Yun (2010)
Impact of caregivers’ unmet needs for supportive care on quality of terminal cancer care delivered and caregiver’s workforce performanceSupportive Care in Cancer, 18
Anna-leila Williams, R. McCorkle (2011)
Cancer family caregivers during the palliative, hospice, and bereavement phases: A review of the descriptive psychosocial literaturePalliative and Supportive Care, 9
T. Merluzzi, E. Philip, D. Vachon, Carolyn Heitzmann (2011)
Assessment of self-efficacy for caregiving: The critical role of self-care in caregiver stress and burdenPalliative and Supportive Care, 9
(2008)
Rural-urban differences in end-of-life care: Reflections on social contracts
M. Elliott (1989)
Health and social care in the community.Elderly care, 9 2
L. Anselm, Strauss, Andrew Cerniglia (2008)
Excerpts from : The Discovery of Grounded Theory : Strategies for Qualitative Research
N. Hanlon, G. Halseth, A. Ostry (2011)
Stealth voluntarism: an expectation of health professional work in underserviced areas?Health & place, 17 1
K. Stajduhar, B. Davies. (2005)
Variations in and factors influencing family members' decisions for palliative home carePalliative Medicine, 19
A. Clavarino, J. Lowe, S. Carmont, K. Balanda (2002)
The needs of cancer patients and their families from rural and remote areas of Queensland.The Australian journal of rural health, 10 4
Virginia Conley, Mary Burman (1997)
Informational needs of caregivers of terminal patients in a rural state.Home healthcare nurse, 15 11
B. Pesut, C. Robinson, J. Bottorff, Gillian Fyles, Sandra Broughton (2010)
On the road again: Patient perspectives on commuting for palliative carePalliative and Supportive Care, 8
P. Hudson, C. Remedios, K. Thomas (2010)
A systematic review of psychosocial interventions for family carers of palliative care patientsBMC Palliative Care, 9
P. Kenny, Jane Hall, Siggi Zapart, Pauline Davis (2010)
Informal care and home-based palliative care: the health-related quality of life of carers.Journal of pain and symptom management, 40 1
B. Andershed (2006)
Relatives in end-of-life care--part 1: a systematic review of the literature the five last years, January 1999-February 2004.Journal of clinical nursing, 15 9
Yasmin Akram (2008)
Palliative medicineBMJ : British Medical Journal, 336
A. Mamhidir, M. Kihlgren, V. Soerlie (2011)
Be known, be available, be mutual: A qualitative ethical analysis of social values in rural palliative care
R. Cain, M. Maclean, S. Sellick (2004)
Giving support and getting help: Informal caregivers' experiences with palliative care servicesPalliative and Supportive Care, 2
Bart Osse, M. Vernooij-Dassen, E. Schadé, R. Grol (2006)
Problems Experienced by the Informal Caregivers of Cancer Patients and Their Needs for SupportCancer Nursing, 29
K. Brazil, M. Bédard, P. Krueger, T. Abernathy, L. Lohfeld, K. Willison (2005)
Service preferences among family caregivers of the terminally ill.Journal of palliative medicine, 8 1
W. Duggleby, K. Penz, D. Goodridge, Donna Wilson, B. Leipert, P. Berry, Sylvia Keall, Christopher Justice (2010)
The transition experience of rural older persons with advanced cancer and their families: a grounded theory studyBMC Palliative Care, 9
P. Hughes, M. Ingłeton, B. Noble, D. Clark (2004)
Providing Cancer and Palliative Care in Rural Areas: A Review of Patient and Carer NeedsJournal of Palliative Care, 20
C. Robinson, B. Pesut, J. Bottorff (2010)
Issues in rural palliative care: views from the countryside.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association, 26 1
C. Robinson, B. Pesut, J. Bottorff, A. Mowry, Sandra Broughton, Gillian Fyles (2009)
Rural Palliative Care: A Comprehensive Review.Journal of palliative medicine
R. Harding, I. Higginson (2001)
Working with ambivalence: informal caregivers of patients at the end of lifeSupportive Care in Cancer, 9
G. Grande, K. Stajduhar, S. Aoun, Caroline Toye, L. Funk, J. Addington-hall, S. Payne, C. Todd (2009)
Supporting lay carers in end of life care: current gaps and future prioritiesPalliative Medicine, 23
(2011)
Designing and conducting mixed methods research (2nd ed.)
S. Lockie, J. Bottorff, C. Robinson, B. Pesut (2010)
Experiences of rural family caregivers who assist with commuting for palliative care.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres, 42 1
There is urgent need to effectively support the well-being of rural palliative family caregivers (FCGs). A mixed method study was conducted with 23 FCGs. Data collection included completion of an assessment questionnaire and semistructured interviews. The most prevalent needs identified by questionnaire were caring for the patient’s pain, fatigue, body, and nourishment; FCG’s fatigue and need for respite. Yet few FCGs wanted more attention to these needs by healthcare providers. FCGs resisted considering their own personal needs. Instead, they focused on needs related to providing care including to be(come) a palliative caregiver, be skilled and know more, navigate competing wishes, needs, demands, and priorities, and for “an extra pair of hands.” Gaps in rural palliative services contributed to low expectations for assistance; reluctance to seek assistance was influenced by FCGs’ resourcefulness and independence. Findings suggest that supporting FCGs will most likely be successful when framed in relation to their caregiving role.
Journal of Family Nursing – SAGE
Published: Nov 1, 2012
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