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References (53)
-
Rosemarie Anderson (2004)
Intuitive inquiry: An epistemology of the heart for scientific inquiryThe Humanistic Psychologist, 32
-
G. Flores, Christina Bridon, S. Torres, R. Perez, T. Walter, J. Brotanek, Hua Lin, S. Tomany-Korman (2009)
Improving Asthma Outcomes in Minority Children: A Randomized, Controlled Trial of Parent MentorsPediatrics, 124
-
(2010)
Global Initiative for Asthma Report, Global Strategy for Asthma Management and Prevention Report 2007 (updated 2010) -
A. McNelis, B. Musick, J. Austin, Polly Larson, D. Dunn (2007)
Psychosocial care needs of children with recent-onset asthma.Journal for specialists in pediatric nursing : JSPN, 12 1
-
P. Drentea, Jennifer Moren-Cross (2005)
Social capital and social support on the web: the case of an internet mother site.Sociology of health & illness, 27 7
-
J. Primomo, S. Johnston, Francis Dibiase, Jocelyn Nodolf, Leanne Noren (2006)
Evaluation of a community-based outreach worker program for children with asthma.Public health nursing, 23 3
-
Amanda Cummings, R. Knibb, M. Erlewyn-Lajeunesse, R. King, G. Roberts, J. Lucas (2010)
Management of nut allergy influences quality of life and anxiety in children and their mothersPediatric Allergy and Immunology, 21
-
M. Wise, A. Pulvermacher, K. Shanovich, D. Gustafson, C. Sorkness, Abhik Bhattacharya (2010)
Using Action Research to Implement an Integrated Pediatric Asthma Case Management and eHealth Intervention for Low-Income FamiliesHealth Promotion Practice, 11
-
M. Partridge, A. Caress, Clare Brown, Jean Hennings, Karen Luker, Ashley Woodcock, Malcolm Campbell (2008)
Can lay people deliver asthma self-management education as effectively as primary care based practice nurses?Thorax, 63
-
L. Plantin, K. Daneback (2009)
Parenthood, information and support on the internet. A literature review of research on parents and professionals onlineBMC Family Practice, 10
-
L. Boulet, E. Dorval, M. Labrecque, M. Turgeon, T. Montague, R. Thiviergé (2008)
Towards Excellence in Asthma Management: final report of an eight-year program aimed at reducing care gaps in asthma management in Quebec.Canadian respiratory journal, 15 6
-
P. Vargas, E. Robles, Judith Harris, P. Radford (2010)
Using Information Technology to Reduce Asthma Disparities in Underserved Populations: A Pilot StudyJournal of Asthma, 47
-
V. Lemaigre, O. Bergh, Katrien Hasselt, S. Peuter, An Victoir, G. Verleden (2005)
Understanding participation in an asthma self-management program.Chest, 128 5
-
N. Denzin, Y. Lincoln (2005)
The Sage handbook of qualitative research, 3rd ed. -
M. Kreuter, R. Wray (2003)
Tailored and targeted health communication: strategies for enhancing information relevance.American journal of health behavior, 27 Suppl 3
-
(2000)
Whatever happened to qualitative description? Research -
H. Hsieh, S. Shannon (2005)
Three Approaches to Qualitative Content AnalysisQualitative Health Research, 15
-
J. Han, M. Wise, Eunkyung Kim, Raymond Pingree, R. Hawkins, S. Pingree, F. McTavish, D. Gustafson (2010)
Factors Associated with Use of Interactive Cancer Communication System: An Application of the Comprehensive Model of Information SeekingJournal of computer-mediated communication : JCMC, 15 3
-
M. Cabana, T. Le (2005)
Challenges in asthma patient education.The Journal of allergy and clinical immunology, 115 6
-
G. Flores, Milagros Abreu, S. Tomany-Korman, J. Meurer (2005)
Keeping Children With Asthma Out of Hospitals: Parents' and Physicians' Perspectives on How Pediatric Asthma Hospitalizations Can Be PreventedPediatrics, 116
-
S. McGhan, Eric Wong, H. Sharpe, P. Hessel, Puishkumar Mandhane, V. Boechler, C. Majaesic, A. Befus (2010)
A children's asthma education program: Roaring Adventures of Puff (RAP), improves quality of life.Canadian respiratory journal, 17 2
-
S. Krishna, Benjamin Francisco, E. Balas, P. König, G. Graff, R. Madsen (2003)
Internet-enabled interactive multimedia asthma education program: a randomized trial.Pediatrics, 111 3
-
M. Kastner, L. Harada, S. Waserman (2010)
Gaps in anaphylaxis management at the level of physicians, patients, and the community: a systematic review of the literatureAllergy, 65
-
D. Mandell, Ruth Curtis, M. Gold, S. Hardie (2005)
Anaphylaxis: how do you live with it?Health & social work, 30 4
-
(2010)
community-based family physicians -
J. Mangan, Angelina Wittich, L. Gerald (2007)
The potential for reducing asthma disparities through improved family and social function and modified health behaviors.Chest, 132 5 Suppl
-
(2005)
Management of asthma among community - based family physicians -
F. Braido, I. Baiardini, S. Menoni, V. Brusasco, S. Centanni, G. Girbino, R. Negro, G. Canonica (2011)
Asthma Management Failure: A Flaw in Physicians' Behavior or in Patients' Knowledge?Journal of Asthma, 48
-
Quintana Y, Feightner Jw, Wathen Cn, Sangster Lm, Marshall Jn, F. Meric, E. Bernstam, N. Mirza, K. Hunt, F. Ames, M. Ross, H. Kuerer, R. Pollock, M. Musen, S. Singletary (2002)
Breast cancer on the world wide web: cross sectional survey of quality of information and popularity of websitesBMJ : British Medical Journal, 324
-
Hae-Ra Han, A. Belcher (2001)
Computer-mediated support group use among parents of children with cancer--an exploratory study.Computers in nursing, 19 1
-
T. Bodenheimer, K. Lorig, H. Holman, K. Grumbach (2002)
Patient self-management of chronic disease in primary care.JAMA, 288 19
-
M. Sandelowski (2010)
What's in a name? Qualitative description revisited.Research in nursing & health, 33 1
-
Lara Akinbami, K. Schoendorf (2002)
Trends in childhood asthma: prevalence, health care utilization, and mortality.Pediatrics, 110 2 Pt 1
-
D. Gustafson, R. Hawkins, F. McTavish, S. Pingree, Wei Chen, K. Volrathongchai, W. Stengle, J. Stewart, R. Serlin (2008)
Internet-Based Interactive Support for Cancer Patients: Are Integrated Systems Better?The Journal of communication, 58 2
-
A. Gershon, J. Guan, Chengning Wang, T. To (2010)
Trends in asthma prevalence and incidence in Ontario, Canada, 1996-2005: a population study.American journal of epidemiology, 172 6
-
E. Fisher (2009)
A randomized controlled evaluation of the effect of community health workers on hospitalization for asthma (Archives of Pediatrics and Adolescent Medicine (2009) 163, 3, (225-232))JAMA Pediatrics, 163
-
M. Klinnert, Jane Robinson (2008)
Addressing the psychological needs of families of food-allergic childrenCurrent Allergy and Asthma Reports, 8
-
J. Garbutt, Christina Banister, G. Highstein, Randall Sterkel, Jay Epstein, Julie Bruns, L. Swerczek, Suzanne Wells, B. Waterman, R. Strunk, G. Bloomberg (2010)
Telephone coaching for parents of children with asthma: impact and lessons learned.Archives of pediatrics & adolescent medicine, 164 7
-
T. Bryant-Stephens, C. Kurian, Rong Guo, Hauqing Zhao (2009)
Impact of a household environmental intervention delivered by lay health workers on asthma symptom control in urban, disadvantaged children with asthma.American journal of public health, 99 Suppl 3
-
N. Akeson, A. Worth, A. Sheikh (2007)
The psychosocial impact of anaphylaxis on young people and their parentsClinical & Experimental Allergy, 37
-
(2005)
Allergies: How do you live with it -
(2010)
Opportunities and barriers to disease prevention counseling -
R. Tsuyuki, D. Sin, H. Sharpe, R. Cowie, Carolyn Nilsson, S. Man, For (AS (2005)
Management of Asthma Among Community-Based Primary Care PhysiciansJournal of Asthma, 42
-
M. Wise, D. Gustafson, C. Sorkness, Todd Molfenter, A. Staresinic, Tracy Meis, R. Hawkins, K. Shanovich, N. Walker (2007)
Internet Telehealth for Pediatric Asthma Case Management: Integrating Computerized and Case Manager Features for Tailoring a Web-Based Asthma Education ProgramHealth Promotion Practice, 8
-
S. Seung, N. Mittmann (2005)
Urgent care costs of uncontrolled asthma in Canada, 2004.Canadian respiratory journal, 12 8
-
(2005)
Understanding participation in an asthma -
K. Iley (2007)
The impact of asthma on children's lives: a social perspective.Primary Health Care
-
M. Sandelowski (2000)
Whatever happened to qualitative description?Research in nursing & health, 23 4
-
Detweiler Hk (1947)
MANAGEMENT OF ASTHMA.Canadian Medical Association journal, 56 4
-
(2010)
Gaps in allergies management at the level of physicians , patients , and the community : A systematic review of the literature -
E. Fisher, R. Strunk, G. Highstein, Roslyn Kelley-Sykes, K. Tarr, K. Trinkaus, J. Musick (2009)
A randomized controlled evaluation of the effect of community health workers on hospitalization for asthma: the asthma coach.Archives of pediatrics & adolescent medicine, 163 3
-
J. Protudjer, A. Kozyrskyj, A. Becker, G. Marchessault (2009)
Normalization Strategies of Children With AsthmaQualitative Health Research, 19
-
Lisa Wolff, H. Massett, Deanne Weber, R. Mockenhaupt, S. Hassmiller, E. Maibach (2010)
Opportunities and barriers to disease prevention counseling in the primary care setting: a multisite qualitative study with US health consumers.Health promotion international, 25 3
- Publisher
- SAGE
- Copyright
- © The Author(s) 2011
- ISSN
- 1074-8407
- eISSN
- 1552-549X
- DOI
- 10.1177/1074840711415416
- pmid
- 21813815
- Publisher site
- See Article on Publisher Site
Abstract
Many families of children with asthma and allergies experience support deficits and isolation. However, support interventions have not been designed to meet their needs. Consequently, parents’ intervention preferences were elicited, and an online peer support group intervention was designed based on these preferences and piloted in the study described. In-depth interviews with 44 parents elicited preferences for support interventions for both children and parents. Many said they felt alone and wanted support from others in similar situations. Based on the parents’ preferences for accessible online peer support groups, a pilot online intervention was designed and implemented. Parents received information and reassurance from other parents in peer support sessions. Parents appreciated the accessibility and anonymity of the online support group. This innovative online peer support intervention, informed by parents’ preferences, could be adapted and tested in intervention trials and guide programs and practice for families affected by asthma, allergies, and other chronic conditions.
Journal
Journal of Family Nursing – SAGE
Published: Aug 1, 2011