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Mothers of Children with Acquired Disabilities: Using the Subjective Voice to Inform Parent/Professional Partnership

Mothers of Children with Acquired Disabilities: Using the Subjective Voice to Inform... This article presents findings from a phenomenological dissertation that interviewed mothers of young children who acquired permanent disabilities. Mothers' accounts provide a rich source of information to professionals about the subjective and interpersonal experiences that accompany unexpected acquired disability in a young child. Their stories reveal the complex interplay of emotions that occur in the immediate aftermath of acquired disability and all along the continuum of the child's care. Mothers also identify qualities and barriers that influence their satisfaction with parent/professional relationships. The article highlights the value of an integrated model for theory and practice based on mothers' earned wisdom. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png OMEGA - Journal of Death and Dying SAGE

Mothers of Children with Acquired Disabilities: Using the Subjective Voice to Inform Parent/Professional Partnership

OMEGA - Journal of Death and Dying , Volume 51 (1): 15 – Aug 1, 2005

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References (36)

Publisher
SAGE
Copyright
© 2005 SAGE Publications
ISSN
0030-2228
eISSN
1541-3764
DOI
10.2190/6DGR-JRM1-1E84-1HE9
Publisher site
See Article on Publisher Site

Abstract

This article presents findings from a phenomenological dissertation that interviewed mothers of young children who acquired permanent disabilities. Mothers' accounts provide a rich source of information to professionals about the subjective and interpersonal experiences that accompany unexpected acquired disability in a young child. Their stories reveal the complex interplay of emotions that occur in the immediate aftermath of acquired disability and all along the continuum of the child's care. Mothers also identify qualities and barriers that influence their satisfaction with parent/professional relationships. The article highlights the value of an integrated model for theory and practice based on mothers' earned wisdom.

Journal

OMEGA - Journal of Death and DyingSAGE

Published: Aug 1, 2005

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