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Family Caregivers’ Experiences of Caring for a Relative With Younger Onset Dementia

Family Caregivers’ Experiences of Caring for a Relative With Younger Onset Dementia Family caregiving for people with younger onset dementia affects everyone in the family unit. This article presents findings of a qualitative systematic review exploring the experiences of family caregivers of persons with younger onset dementia. A systematic search resulted in the inclusion of five relevant articles, and two groups within the family unit were identified—child caregivers and adult and spousal caregivers. Using the thematic synthesis approach, five themes emerged: dementia damage, grief for loss of relationship, changes in family roles, positive and negative impacts of family caregiving, and transition to formal care. The review findings support increasing evidence that despite the stress of caring for a person with dementia damage, family members have the capacity to cope, adapt, and grow through their experiences. Nurses can assist families to identify their unique strengths and enhance family resiliency so they can navigate the “lonely road” of younger onset dementia. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Journal of Family Nursing SAGE

Family Caregivers’ Experiences of Caring for a Relative With Younger Onset Dementia

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References (59)

Publisher
SAGE
Copyright
© The Author(s) 2015
ISSN
1074-8407
eISSN
1552-549X
DOI
10.1177/1074840715573870
pmid
25724671
Publisher site
See Article on Publisher Site

Abstract

Family caregiving for people with younger onset dementia affects everyone in the family unit. This article presents findings of a qualitative systematic review exploring the experiences of family caregivers of persons with younger onset dementia. A systematic search resulted in the inclusion of five relevant articles, and two groups within the family unit were identified—child caregivers and adult and spousal caregivers. Using the thematic synthesis approach, five themes emerged: dementia damage, grief for loss of relationship, changes in family roles, positive and negative impacts of family caregiving, and transition to formal care. The review findings support increasing evidence that despite the stress of caring for a person with dementia damage, family members have the capacity to cope, adapt, and grow through their experiences. Nurses can assist families to identify their unique strengths and enhance family resiliency so they can navigate the “lonely road” of younger onset dementia.

Journal

Journal of Family NursingSAGE

Published: Aug 1, 2015

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