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A narrative exploration of identity in adults with de novo scoliosis

A narrative exploration of identity in adults with de novo scoliosis Adult de novo scoliosis is a chronic health condition characterised by a curvature in the ageing spine. It can cause debilitating back pain and significant visible differences. Yet there has been very limited research on the psychological effects of this condition, particularly around identity. Therefore, we undertook semi-structured interviews to explore the ways in which individuals with scoliosis understood their identity. Findings from narrative analysis highlight the ways in which individuals negotiate their identity in relation to their social roles, their ability to control their condition and things around them, the extent to which their condition is visible and the extent to which they experienced physical pain from their condition. This article concludes by highlighting the relationship between identity and scoliosis and offers practical implications and suggestions for future research. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine SAGE

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References (69)

Publisher
SAGE
Copyright
© The Author(s) 2022
ISSN
1363-4593
eISSN
1461-7196
DOI
10.1177/13634593211067892
Publisher site
See Article on Publisher Site

Abstract

Adult de novo scoliosis is a chronic health condition characterised by a curvature in the ageing spine. It can cause debilitating back pain and significant visible differences. Yet there has been very limited research on the psychological effects of this condition, particularly around identity. Therefore, we undertook semi-structured interviews to explore the ways in which individuals with scoliosis understood their identity. Findings from narrative analysis highlight the ways in which individuals negotiate their identity in relation to their social roles, their ability to control their condition and things around them, the extent to which their condition is visible and the extent to which they experienced physical pain from their condition. This article concludes by highlighting the relationship between identity and scoliosis and offers practical implications and suggestions for future research.

Journal

Health An Interdisciplinary Journal for the Social Study of Health Illness and MedicineSAGE

Published: Sep 1, 2023

Keywords: ageing; distress; lived experience; long-term; musculoskeletal disorders; pain; self; stress

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