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Background The introduction of antiviral agents, most particularly highly active antiretroviral therapy HAART, has changed the very nature of the care for persons with HIV andor AIDS, from preparing patients to die to assisting patients with living with a chronic illness. Despite this dramatic turnaround in prognosis, the limited literature available indicates that these individuals often do not have a high degree of hope for the future. Accordingly, this study seeks to explain how hope might be inspired and maintained in people living longterm with HIVAIDS the socalled Lazarus Syndrome. Design The study used a modified Glaserian grounded theory method and was conducted in the United States of America. A total of 10 participants were selected by means of theoretical sampling. Methods The study adhered to the principal features of Glaserian Grounded Theory, namely a theory generation, not theory verification b theoretical sampling c the constant comparative method of data analysis and d theoretical sensitivity searching fordiscovering the core variable, one which identifies the key psychosocial process and contains temporal dimensions or stages. Further, the authors ensured that the study was concerned with generating conceptual theory, not conceptual description. Findingsconclusion The findings indicate that the key psychosocial problem i.e. the maintenance of hope is addressed through the core variable, Turning from death to life finding new meaning. This parsimonious theory describes and explains a fourstage process of hope maintenance consisting of the subcore variables Losing the Ontological Self, Turning from Death to Life, Finding Acceptance and Reconciliation, and Finding New Meaning.
Qualitative Research Journal – Emerald Publishing
Published: Apr 6, 2011
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