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Evaluation of a pilot relapse support service (RSS) for people with multiple sclerosis – “a tiny pot of sunshine in my pocket”

Evaluation of a pilot relapse support service (RSS) for people with multiple sclerosis – “a tiny... Purpose – Multiple sclerosis (MS) relapses are unpredictable in onset, severity, type of symptoms, and duration. They can have a profound effect on a person's daily activities, employment, relationships with friends and family, and social life. Individual budgets may be a means of providing personalised, timely, and flexible support to people with MS in preparation for, and during, a relapse. This paper aims to report on a pilot scheme that aimed to help people with MS to prepare for future relapse. Design/methodology/approach – The paper provides an evaluation of a one year pilot scheme conducted in East Sussex, UK, that aimed to help people with MS to prepare for future relapse by a process of tailored relapse support planning, in combination with the provision of an individual grant of £750. Findings – An independent, mixed methods evaluation ( n =12) was conducted incorporating telephone and face‐to‐face interviews, focus groups, and self‐reported questionnaires. The evaluation indicated that the service was valued by participants and that, overall, they reported feeling more in control of managing a relapse or worsening of symptoms. Originality/value – The results will inform the development and expansion of the service, with larger scale research projects required to further establish the evidence base. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Social Care and Neurodisability Emerald Publishing

Evaluation of a pilot relapse support service (RSS) for people with multiple sclerosis – “a tiny pot of sunshine in my pocket”

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Publisher
Emerald Publishing
Copyright
Copyright © 2012 Emerald Group Publishing Limited. All rights reserved.
ISSN
2042-0919
DOI
10.1108/20420911211240948
Publisher site
See Article on Publisher Site

Abstract

Purpose – Multiple sclerosis (MS) relapses are unpredictable in onset, severity, type of symptoms, and duration. They can have a profound effect on a person's daily activities, employment, relationships with friends and family, and social life. Individual budgets may be a means of providing personalised, timely, and flexible support to people with MS in preparation for, and during, a relapse. This paper aims to report on a pilot scheme that aimed to help people with MS to prepare for future relapse. Design/methodology/approach – The paper provides an evaluation of a one year pilot scheme conducted in East Sussex, UK, that aimed to help people with MS to prepare for future relapse by a process of tailored relapse support planning, in combination with the provision of an individual grant of £750. Findings – An independent, mixed methods evaluation ( n =12) was conducted incorporating telephone and face‐to‐face interviews, focus groups, and self‐reported questionnaires. The evaluation indicated that the service was valued by participants and that, overall, they reported feeling more in control of managing a relapse or worsening of symptoms. Originality/value – The results will inform the development and expansion of the service, with larger scale research projects required to further establish the evidence base.

Journal

Social Care and NeurodisabilityEmerald Publishing

Published: May 11, 2012

Keywords: Multiple sclerosis; Relapse support; Individual budgets; Service evaluation; United Kingdom; Health care; Social care

References