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L. Ludikhuize, M. Jansen, H. Hooimeijer, E. Bont, R. Tamminga (2016)
Feasibility of video consultations in case of acute complications in children with haemophiliaHaemophilia, 22
Clemens Kruse, Priyanka Karem, Kelli Shifflett, Lokesh Vegi, Karuna Ravi, Matthew Brooks (2016)
Evaluating barriers to adopting telemedicine worldwide: A systematic reviewJournal of Telemedicine and Telecare, 24
42023) 22 hemophilia A/ (21239) 23 hemophilia B/ (7944)
Kimberly Jacobson, M. Hooke (2016)
Telehealth Videoconferencing for Children With Hemophilia and Their FamiliesJournal of Pediatric Oncology Nursing, 33
M. Álvarez‐Román, H. Corte-Rodriguez, E. Rodríguez‐Merchán, M. Martin-Salces, M. Rivas‐Pollmar, N. Butta, S. García‐Barcenilla, P. Acuña, T. Cebanu, Elena González, María Monzón‐Manzano, V. Jiménez‐Yuste (2020)
COVID‐19 and telemedicine in haemophilia in a patient with severe haemophilia A and orthopaedic surgeryHaemophilia, 27
Factor VIII deficienc*") OR ("factor viii deficiency"[All Fields]) OR ("Factor IX deficienc*") OR ("factor ix 27 Factor XI Deficiency
P. Pariser, T. Pham, J. Brown, M. Stewart, J. Charles (2019)
Connecting People With Multimorbidity to Interprofessional Teams Using TelemedicineThe Annals of Family Medicine, 17
H. Almathami, K. Win, Elena Vlahu-Gjorgievska (2020)
Barriers and Facilitators That Influence Telemedicine-Based, Real-Time, Online Consultation at Patients’ Homes: Systematic Literature ReviewJournal of Medical Internet Research, 22
(2021)
Pneumonia of unknown cause – China
Zvi Gellis, Bonnie Kenaley, J. McGinty, E. Bardelli, J. Davitt, T. Have (2012)
Outcomes of a telehealth intervention for homebound older adults with heart or chronic respiratory failure: a randomized controlled trial.The Gerontologist, 52 4
R. Kulkarni (2018)
Use of telehealth in the delivery of comprehensive care for patients with haemophilia and other inherited bleeding disordersHaemophilia, 24
Telemedicine/ (24455) 2 telemedic*.mp. (30936) 3 virtual.mp
A. Zhang, Wei Liu, M. Poon, A. Liu, Xiaoping Luo, Lingling Chen, Q. Hu, R. Yang (2020)
Management of haemophilia patients in the COVID‐19 pandemic: Experience in Wuhan and Tianjin, two differently affected cities in ChinaHaemophilia, 26
N. Zhu, Dingyu Zhang, Wenling Wang, Xingwang Li, Bo Yang, Jingdong Song, Xiang-rong Zhao, Baoying Huang, Wei-feng Shi, R. Lu, P. Niu, F. Zhan, Xuejun Ma, Dayan Wang, Wenbo Xu, Guizhen Wu, G. Gao, W. Tan (2020)
A Novel Coronavirus from Patients with Pneumonia in China, 2019The New England Journal of Medicine, 382
D. Moher, A. Liberati, J. Tetzlaff, D. Altman (2009)
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA StatementPLoS Medicine, 6
A. Srivastava, E. Santagostino, A. Dougall, S. Kitchen, M. Sutherland, S. Pipe, M. Carcao, J. Mahlangu, M. Ragni, J. Windyga, A. Llinás, N. Goddard, Richa Mohan, P. Poonnoose, B. Feldman, Sandra Lewis, H. Berg, G. Pierce (2020)
WFH Guidelines for the Management of Hemophilia, 3rd editionHaemophilia, 26
B. Rosenfeld, T. Dorman, M. Breslow, P. Pronovost, M. Jenckes, Nancy Zhang, G. Anderson, H. Rubin (2000)
Intensive care unit telemedicine: Alternate paradigm for providing continuous intensivist careCritical Care Medicine, 28
OR (teleconsult*) OR ("teleconsultation
K. Saxena (2013)
Barriers and perceived limitations to early treatment of hemophiliaJournal of Blood Medicine, 4
Factor IX deficienc*.mp. (357) 28 blood clotting factor 11 deficiency
OR (telemonitor*) OR ("telemonitor"[All Fields]) OR ("mobile health
Gary Weissman, A. Crane-Droesch, Corey Chivers, ThaiBinh Luong, A. Hanish, Michael Levy, Jason Lubken, Michael Becker, Michael Draugelis, G. Anesi, Patrick Brennan, Jason Christie, C. Hanson, Mark Mikkelsen, Scott Halpern (2020)
Locally Informed Simulation to Predict Hospital Capacity Needs During the COVID-19 PandemicAnnals of Internal Medicine
P. Davis, Rayven Howard, Pam Brockway (2001)
An evaluation of telehealth in the provision of rheumatologic consults to a remote area.The Journal of rheumatology, 28 8
A. Iorio, Jeffrey Stonebraker, H. Chambost, M. Makris, D. Coffin, C. Herr, F. Germini (2019)
Establishing the Prevalence and Prevalence at Birth of Hemophilia in MalesAnnals of Internal Medicine, 171
Peter Stenberg (2018)
Rural Individuals’ Telehealth Practices: An Overview
W. Mondorf, H. Eichler, R. Fischer, K. Holstein, R. Klamroth, A. Nimtz-Talaska, C. Wermes, H. Richter, K. Severin (2018)
Smart Medication ™, an Electronic Diary for Surveillance of Haemophilia Home Care and Optimization of Resource DistributionHämostaseologie, 39
Edward Campion, E. Dorsey, Eric Topol (2016)
State of Telehealth.The New England journal of medicine, 375 2
Remote Consultation/ (4886) 5 remote.mp. (77587) 6 online.mp
Rosenthal syndrome.mp. (917) 30 royal disease.mp
N. Lurie, B. Carr (2018)
The Role of Telehealth in the Medical Response to Disasters.JAMA internal medicine, 178 6
Economic Information Bulletin no. 199. US Department of Agriculture
Hemophilia"[All Fields]) OR (Haemophili*) OR ("Haemophilia
S. Goonewardene, Peter Pietrzak, D. Albala (2018)
Management ofBasic Urological Management
Mairead O'Donovan, Catherine Buckley, Julie Benson, Sheila Roche, M. McGowan, Laura Parkinson, Patricia Byrne, Gloria Rooney, C. Bergin, Deirdre Walsh, R. Bird, Feargal McGroarty, Helen Fogarty, E. Smyth, S. Ahmed, J. O’Donnell, K. Ryan, B. O’Mahony, A. Dougall, N. O'Connell (2020)
Telehealth for delivery of haemophilia comprehensive care during the COVID‐19 pandemicHaemophilia, 26
F. Udsen, O. Hejlesen, L. Ehlers (2014)
A systematic review of the cost and cost-effectiveness of telehealth for patients suffering from chronic obstructive pulmonary diseaseJournal of Telemedicine and Telecare, 20
(2020)
COVID-19 – China
C. Kruse, Nicole Krowski, B. Rodriguez, Lan Tran, J. Vela, Matthew Brooks (2017)
Telehealth and patient satisfaction: a systematic review and narrative analysisBMJ Open, 7
B. Dinesen, L. Haesum, N. Soerensen, C. Nielsen, O. Grann, O. Hejlesen, E. Toft, L. Ehlers (2012)
Using preventive home monitoring to reduce hospital admission rates and reduce costs: a case study of telehealth among chronic obstructive pulmonary disease patientsJournal of Telemedicine and Telecare, 18
Factor XI deficienc*.mp. (751)
J. Shepherd (2021)
COVID-19 and telemedicineInnovAiT, 14
1671) 9 telehealth.mp. (5862) 10 mhealth.mp. (5076) 11 mobile health.mp. (8213) 12 video conferenc*.mp. (840) 13 videoconferenc*.mp. (3161) 14 virtual visit*.mp
(2001)
An Overview of the
All Fields]) OR ("virtual visit*") OR ("virtual visit
Fernando Mateo, J. Carrasco, M. Aguilar-Rodríguez, E. Soria-Olivas, S. Bonanad, F. Querol, S. Pérez-Alenda (2019)
Assessment of Kinect V2 for elbow range of motion estimation in people with haemophilia using an angle correction modelHaemophilia, 25
AbstractIntroductionPatients with haemophilia require regular assessments and physical examinations. The COVID-19 pandemic has resulted in the rapid adoption of telemedicine to enable virtual consultations and reduce hospital visits. However, the process of virtual consultations is new to many haemophilia clinics. A better understanding of best practices in telemedicine is important to ensure optimal quality of care for patients with haemophilia.ObjectivesTo summarise the current literature on the use of direct-to-consumer telemedicine for patients with haemophilia and to describe the effectiveness and potential limitations of the technology and methods used.MethodsA comprehensive search was conducted in MEDLINE and EMBASE databases using terms referring to the concepts “haemophilia” AND “telemedicine” and their synonyms. There were no time or language restrictions. Title, abstracts, and full texts were screened. Included articles involved telemedicine interventions to facilitate clinical services directly between patients and providers without the use of third-party personnel. The primary outcome was the satisfaction of providers and patients. Secondary outcomes included economic considerations and clinical outcomes. Information was extracted based on study-specific, patient-specific, intervention-specific, and outcome-specific data.ResultsOf the 925 articles screened, six were identified and summarised. Three described telemedicine within the context of COVID-19. Technologies used included telephone calls, videoconferencing, text messaging, and email. All studies involved a multidisciplinary team. Telemedicine in haemophilia care was found to positively impact the patient experience. Providers were satisfied with telemedicine. It was also suggested to be economically beneficial and positively impacted patient outcomes. However, none of the articles reported on how telemedicine was specifically used to perform assessments during the virtual consultation process.ConclusionsThere is preliminary evidence that telemedicine may be beneficial in haemophilia care. Overall, patients and providers reported high satisfaction with the usage of direct-to-consumer telemedicine. This positive reception warrants improvements in standardisation of reporting and quality of study design to better assess its clinical and economic impact. Developing a standard guideline for virtual consultations would support healthcare practitioners in how to best incorporate telemedicine to improve quality of care.
The Journal of Haemophilia Practice – de Gruyter
Published: Jan 1, 2021
Keywords: Telemedicine; haemophilia; COVID-19; consultation; technology
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