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This article explores secrecy and openness in the context of chronic and life-shortening illness. Illustrated by clinical work with families at the Center for Families and Health at the Ackerman Institute for the Family, I examine the impact of secrecy on family relationships, including the...
This study is grounded in theories of information management. Patients with a diagnosed heart-related condition (N = 253) completed a survey regarding their perceptions of sharing/not sharing information with a partner about their health condition. Data were analyzed using descriptive and...
Childhood cancer is a family affair, and each year in Canada, approximately 1,400 children and adolescents under the age of 20 are diagnosed with cancer. Innumerable challenges accompany this diagnosis, and in recognition of the stress of childhood cancer, children’s cancer camps arose in the...
This article explores mutual caregiving between older spouses aging with physical disabilities. Nine older couples, where both partners had lived long lives with physical disabilities, were interviewed as dyads about mutual caregiving. The couples not only had access to different kinds and...
Estimates suggest that between 41% and 94% of breast cancer survivors may develop the chronic condition of secondary lymphedema at some point during their lifetimes. Self-care is critical for effective lymphedema management and risk-reduction. At the same time, women in general have been...
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